A podcast about diabetes and genes
With Andrew Hattersley
and Maggie Shepherd
A podcast about diabetes and genes
With Andrew Hattersley
and Maggie Shepherd
div id=’buzzsprout-small-player-tags-1in6b-3-16′>
Grace Bervoets talks about living with cystic fibrosis and cystic fibrosis related-diabetes. Amanada Stride, who works as a diabetes consultant helping people with cystic fibrosis related-diabetes, explains the many challenges of this unusual type of diabetes.
Grace Bervoets works as a team leader in a pharmacy in Devon. She was diagnosed with cystic fibrosis in the first year of life when she was not putting on weight after birth. She needed treatment with Creon to help absorb fat and regular physio and antibiotics to keep her chest clear. When she was 10 years old she was diagnosed with diabetes which needed insulin treatment which was a tricky new development on top of everything else. She is now manged on an insulin pump and a glucose sensor. The new treatment with CFTR modulators has greatly improved her lung function and enhanced her quality of life.
Dr Amanda Stride is a diabetes consultant who works in the Cystic Fibrosis clinic in Exeter. Her interest in cystic fibrosis related-diabetes (CFRD) started when she was a research doctor in Exeter when she worked with Lee Dobson who researched CFRD. She finds treating cystic fibrosis related-diabetes very different from Type 1 diabetes with the extra challenges of fat malabsorption, high fat/ high sugar diets, the impact of serious infections, how the CFTR modulators alter insulin secretion and fitting the diabetes into an already packed life. She sees a multi-disciplinary clinic with other professionals looking after other aspects of the cystic fibrosis is central to provide the best care for patients.
Information about Cystic Fibrosis and details of support available to people living with cystic fibrosis is available on the Cystic Fibrosis Trust website https://www.cysticfibrosis.org.uk/
Recommendations on the management of cystic fibrosis-related diabetes from ISPAD are available here.